About us

We are dedicated to raising awareness of the genetic disorder caused by mutations in the gene Snap25, and working towards finding a cure.

Our history

2013

2020

2022

2023

The first person is diagnosed

The SNAP25 Foundation is founded

SNAP25 Foundation became a 501C3

Fundraising begins!

What we achieved

so far

30+

Known cases 

10+

Publications

10+

Years of looking for 

a cure

CONTACT INFORMATION

SNAP25 Foundation, Inc.

27 West 96 Street, #16C
New York, N.Y. 10025


EIN: 85-41 67 489