About us


We are dedicated parents,

advocating for our children.



Previous and current research

around the world.



Support our work with a donation.

Donations are tax-deductible in the US.

Snap25 symptoms usually appear in infants or young children, and lead to lifelong disabilities. Our kids most often suffer from severe epilepsy and intellectual disabilities. Some have autism. Many have physical disabilities and get around in wheelchairs. They are all great kids!

Currently there is no cure, and seizures are usually difficult to control.

However, there is hope!

Several researchers are studying this disorder worldwide, and with your help we can move our fight for a cure forward.

We do not want to lose one more child to this disease.

Snap25 Foundation's mission is:


to accelerate research to cure Snap25 disorders


to spread awareness of Snap25


to provide families with knowledge and a supportive community