Newly diagnosed

WELCOME TO OUR NEWLY DIAGNOSED FAMILIES

YOU ARE NOT ALONE

You may have waited years for a diagnosis. You may have been told your child has Cerebral Palsy, Autism or "We don't know".

You have found us, and you are not alone, although you now belong to a very rare and unique community.

Here are some actions you can take immediately:

Parents of Snap25 individuals: Join our Snap25 Facebook Group.

Friends of Snap25 individuals: Follow Snap25 Foundation - Public on Facebook.

Volunteer your time. We need you – please reach out to see how you can get involved! Please contact info@snap25.org

Participate as a Fundraiser for the SNAP25 Foundation. There are many ways you can help. Please reach out to sara@snap25.org for more suggestions.

If you are the parent or primary caregiver for a SNAP25 individual, we encourage you to register in our Contact List below. This information will be used to communicate research and clinical trial opportunities, to share educational and advocacy resources, as well as help families connect with each other. Your information will never be shared for commercial purposes.

Newly diagnosed

WELCOME TO OUR NEWLY DIAGNOSED FAMILIES

YOU ARE NOT ALONE

Here are some actions you can take immediately:

Snap25 disorders are rare.

But together we are building

a community and finding HOPE